Patient-Centered Outcomes Research InstituteEngagement
- What is the difference between patients and other stakeholders?
- Can a patient advocacy organization provide patient perspectives?
- Can a person play more than one role on a team—for example, as both a stakeholder and a researcher?
- Can minors be involved as patient partners in health research?
- How many patient and stakeholder partners need to be involved in my study?
- Is there a particular work title and description for patient and stakeholder partners that we should use?
- If patient partners are not institution employees, can we involve them in recruitment activities requiring access to protected health information?
- How should we approach compensation for patient and stakeholder partners?
- Do I need to involve patients and stakeholders in drafting the application?
- I’m still identifying patient and stakeholder partners for my proposed study. How do I address this in the application?
- Do engagement requirements vary by PCORI Funding Announcement?
- Is there a separate section in the application for describing the proposed engagement activity?
- We are concerned about patient privacy. How will patient and stakeholder names be used by PCORI?
- PCORI isn’t a common funder at my institution. Does PCORI have any resources that can help me explain PCOR/CER and the benefit of engagement to research decision makers and other faculty members?
- Does PCORI provide resources to help applicants and awardees successfully execute their engagement strategy?