PCORI Help Center

Is there a particular work title and description for patient and stakeholder partners that we should use?

No. Meaningful patient engagement occurs in a myriad of ways and along a continuum from input to shared leadership, so partners should be described according to their role and level of involvement. If they have a highly active role in carrying out the work of the study, they might be listed and compensated as co-investigators. If they are serving in an advisory capacity, they might be listed and compensated as consultants. Beyond titles, it is also important to describe the tasks and responsibilities of each partner. To learn more about the engagement continuum and how partner input can influence studies through engagement activities, please see this resource: https://www.healthaffairs.org/doi/full/10.1377/hlthaff.2018.05067

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