PCORI Help Center

We are concerned about patient privacy. How will patient and stakeholder names be used by PCORI?

PCORI recognizes that many partners wish to be credited as contributing members of the research team while others prefer to remain anonymous. It is incumbent upon applicants to obtain appropriate permissions for disclosing the names of partners to PCORI and for use on public-facing materials. When a patient partner requests anonymity, you can use descriptors within your application. For example: Linda, mother of 9-year-old child with diagnosis, or M.C., 45-year-old man with history of opioid use disorder.

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