PCORI Help Center

If the proposed study involves IDD populations who cannot self-report, such as individuals with limited communication, will PCORI accept outcome measures that parents and/or legal guardians have identified as important?

Yes. In certain cases, such outcome measures are acceptable if accompanied by a strong, patient-centered justification for the proposed approach. 

Was this article helpful?
0 out of 0 found this helpful
Have more questions? Submit a request
Powered by Zendesk