PCORI Help Center

How can we involve patient partners who are not institution employees in our recruitment activities, given that they will need to access protected health information?

Awardees must ensure compliance with their institutional privacy and security policies governing access, use, and disclosure of protected health information for research purposes. Please consult your institution’s IRB and/or legal counsel for any questions regarding compliance with the Health Insurance Portability and Accountability Act (HIPAA) regulations and other applicable laws.

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