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If we establish partnerships with insurance companies, must we also partner directly with patient populations?

Successful applicants are required to work in collaboration with PCORI staff upon award of the studies to establish a project SAC that is comprised of national or regional organizations that represent, at minimum, patients and/or families with lived experience, relevant clinicians, payers, and health plans. Other representation may be recommended in collaboration with PCORI, including individual patients with lived experience and other relevant stakeholders, including scientific and methodological experts. The SAC serves to advise and assist the research team with further refinement of the study questions, outcomes, and protocol. It is expected that the SAC will meet regularly in-person at least two times per year, more if needed, and may use virtual communications at other times. These are to be budgeted activities and represented in the project milestones.

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