PCORI Help Center

If we establish partnerships with insurance companies, must we also partner directly with patient populations?

Successful applicants should seek stakeholder partnerships comprised of national or regional organizations that represent, at minimum, patients and/or families with lived experience, relevant clinicians, payers, and health plans. Other representation may be recommended in collaboration with PCORI, including individual patients with lived experience and other relevant stakeholders (e.g., scientific and methodological experts, providers with clinical or intervention delivery expertise). Stakeholder advisory bodies serve to advise and assist the research team with further refinement of the study questions, outcomes, and protocol. Advisory committees, or other appropriately justified governance structure, should meet regularly throughout the study or at a minimum, three times per year. These are to be budgeted activities and represented in the project milestones.

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