PCORI Help Center

Does PCORI offer funding opportunities to support a pre-existing rare disease registry, or the development of a rare disease registry?

The development of a rare disease registry may meet the requirement for PCORI funding if it is a component of a research study aimed to answer CER or enhance patient-centered outcomes research (PCOR) methods.

Details on available funding can be found on our Funding Opportunities Webpage: http://www.pcori.org/funding-opportunities.

Rare disease registries may be of interest to PCORI's Patient-Powered Research Networks, part of PCORnet. More information can be found here: http://www.pcornet.org/about-pcornet/

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